After Surgery...
Returning home from surgery was a total blessing. Celeste was upset that we did not spend our 4th of July at our home. But I could not let her go out of the hospital until I thought she was ready for it. They kept on insisting for her to be discharged but I kept telling them that unless they put a cap on the tubing that was coming out from her intestine... I was not going to leave. They gave me what it is called a "Lopez valve" I could not believe that being in the hospital that we were and with all the great reputation they couldn't find a cap for her tube. Then again, I was still not pleased with the Lopez valve. It was bulky and quite big... while sleeping she needed to take care so she would not roll against it because it would hurt her. Stupid things like this made me so upset that it made me forget all the great effort that the medical team was putting.
Remember that tubing that was left inside her, on her esophagus, that really was a test for us. Every time she would try to eat solid food it hurt her. Food would not go pass that particular area and made her throw out whatever was there. She had an endoscopy done so they would try to take the tube out. They made and effort but it did not budge. So four days after my daughter had a strong cough, something was bothering her throat and she felt like she wanted to vomit as well, so... after coughing and gaging the tube came out by itself!!! I was so relieved that she was able to expel that from her throat, with the hopes of her to eat well and recover from her surgery.
I let the doctor know and he was so relieved that she was able to cough it out. It was about 3 inches long and was made into a loop which made it difficult for her to swallow.
We went for a check up on August 3rd, the main oncologist asked Celeste to stay at the hospital she was not gaining weight and was not eating well through her mouth or with the feedings. She was nauseous every time I turned the pump for her feedings. So they were concerned....
As I was looking at the Doctors faces, I saw real concern and ask us to convince Celeste to come back and be admitted at the hospital, now that I look back ... they knew more than what they were telling us.
We went back the next day... her nausea will not stop, she was not eating from her mouth or from the feeding, I kept blaming the change of formula... it seemed it was light but it was very sticky. If it got on your clothes as it dried up it made it really hard. So I was worried for that.
Scans were done and tests... we had some news to know and the medical team was to meet with us. I was scared to be honest, I wanted to be strong... but like my daughter used to say... I was a "wimpy noodle"!!
Remember that tubing that was left inside her, on her esophagus, that really was a test for us. Every time she would try to eat solid food it hurt her. Food would not go pass that particular area and made her throw out whatever was there. She had an endoscopy done so they would try to take the tube out. They made and effort but it did not budge. So four days after my daughter had a strong cough, something was bothering her throat and she felt like she wanted to vomit as well, so... after coughing and gaging the tube came out by itself!!! I was so relieved that she was able to expel that from her throat, with the hopes of her to eat well and recover from her surgery.
I let the doctor know and he was so relieved that she was able to cough it out. It was about 3 inches long and was made into a loop which made it difficult for her to swallow.
We went for a check up on August 3rd, the main oncologist asked Celeste to stay at the hospital she was not gaining weight and was not eating well through her mouth or with the feedings. She was nauseous every time I turned the pump for her feedings. So they were concerned....
As I was looking at the Doctors faces, I saw real concern and ask us to convince Celeste to come back and be admitted at the hospital, now that I look back ... they knew more than what they were telling us.
We went back the next day... her nausea will not stop, she was not eating from her mouth or from the feeding, I kept blaming the change of formula... it seemed it was light but it was very sticky. If it got on your clothes as it dried up it made it really hard. So I was worried for that.
Scans were done and tests... we had some news to know and the medical team was to meet with us. I was scared to be honest, I wanted to be strong... but like my daughter used to say... I was a "wimpy noodle"!!
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